Questions were raised at two health events this week, on the status of the care.data programme. The most recent NHS England announcement about the care.data rollout progress, was made in October 2014. What’s the current status of Public Information? The IIGOP review in December 2014 , set 27 criteria for the programme to address. The … Continue reading The future of care.data in recent discussions
“The government takes the view that transparency is vital to healthy public services. It has created a new Statistics Commission to improve the quality of information collected (and to end arguments about “fiddling” figures).” [Tim Kelsey, New Statesman, 2001]  In a time of continuing cuts to budgets across the public sector the members of … Continue reading care.data – one of our business cases is missing
Eleven months ago, care.data was put on hold and promises made to listen to professional and public opinion, which would shape programme improvement. Today, Sir Bruce Keogh of NHS England said: “an unprecedented shift of resources and care into GP surgeries was necessary to help the NHS withstand the twin pressures of rising demand and … Continue reading The care.data coach ride: communications – all change or the end of the line?
January looks like it’s going to be a busy NHS news month and December set out a very information rich programme. Do you need a catch up from the holidays time? I know I could do with going back to September really, I blinked and missed the last quarter. But lots of news came in … Continue reading care.data related December news you may have missed in the holiday
“Marley was dead: to begin with. There is no doubt whatever about that.” [A Christmas Carol, Charles Dickens, 1843] “Is care.data dead?” I was asked after our children’s nativity today, “what happened to that GP record sharing project?” The local priest, you may think of all people, wondered what had become of the news stories … Continue reading A care.data Christmas carol
In response to a care.data feature in the November Pharma Times Magazine, I wrote a brief reader letter which was published, slightly abbreviated, on p.13 in the December issue. The November article had given me the impression that legislation in the Care Act from July was considered to have ironed out most patient concerns. And … Continue reading Rebuilding trust in care.data
care.data programme questions remain unanswered  and opportunities to demonstrate better transparency have to date, been turned down. For anyone interested in the care.data rollout, professionals, patients and public alike, it is worrying to see the continued secrecy which shrouds the programme. We’ve been told online (but most in the public will still not know) … Continue reading care.data programme questions remain unanswered – what should patients do now?
Dear NHS England Patients & Information Directorate, We’ve been very patient patients in the care.data pause. Please can we have some answers now? I would like to call for greater transparency and openness about the promises made to the public, project processes & policies and your care.data communication plans. In 2013, in the Health Service Journal … Continue reading Patient questions on care.data – an open letter
[Note update Sept 19th: after the NHS England AGM in the evening of Sept 18th – after this care.data engagement post published 18hrs earlier – I managed to ask Mr.Kelsey, National Director for Patients and Information, in person what was happening with all the engagement feedback and asked why it had not been made publicly … Continue reading The care.data engagement – is it going to jilt citizens after all? A six month summary in twenty-five posts.
“By creating these coloured paper cut-outs, it seems to me that I am happily anticipating things to come…I know that it will only be much later that people will realise to what extent the work I am doing today is in step with the future.” Henri Matisse (1869-1954)  My thoughts on the care.data advisory … Continue reading care.data – “anticipating things to come” means confidence by design