MGM 1939 The Wizard of Oz My final of 3 parts response to The Times article recently which mentioned unfounded fears which ‘evaporate like candyfloss’. The Wizard of Oz that article touched upon, is a threatening fantasy story for many children. But the threats created by the removal of the confidentiality between patient and GP … Continue reading care.data – 3. A mother’s journey: Fears and Facts
David Aaronovitch’s Times’ opinion article on March 27th stated data privacy fears have made health-data sharing “toxic” and that campaigners are nothing but a ‘man with a megaphone’, like the Wizard of Oz. My response, part two. Communications & Choice. 1939 – The Wizard of Oz – MGM Honesty, clarity and real communication, not PR, … Continue reading care.data – 2. A mother’s journey in Oz: communication & choice
1939 The wizard of Oz MGM David Aaronovitch’s Times’ article on March 27th stated data privacy fears have made health-data sharing “toxic” and that campaigners are nothing but a ‘man with a megaphone’, like the Wizard of Oz. Mr. Aaronovitch chose the perfect fairy tale, but like Dorothy, it landed the wrong way round. It … Continue reading care.data – 1. A mother’s journey in Oz: transparency.
Mother’s Day seemed as good a day as any, to reflect how I safeguard my children in future, in a cloud-based digital world and currently, on care.data. Ever since I first read last summer about the initiative to be implemented by the Health and Social Care Centre, I have followed as in depth, as much … Continue reading care.data – Intro. A mother’s journey in Oz.
Based on a talk prepared for an event in parliament, hosted by Connected By Data and chaired by Lord Tim Clement-Jones, focusing on the Data Protection and Digital Information Bill, on Monday 5th December 17:00-19:00. “Ensuring people have a say in future data governance”. Some reflections on Data in Schools (a) general issues; (b) the … Continue reading Ensuring people have a say in future data governance
After Dominic Cummings’ marathon session at the Select Committee, the Times published an article on,”The heroes and villains of the pandemic, according to Dominic Cummings” One of Dom’s villains left out, was data protection law. He claimed, “if someone somewhere in the system didn’t say, ‘ignore GDPR’ thousands of people were going to die,” and … Continue reading Data Protection law is being set up as a patsy.
Today was the APPG AI Evidence Meeting – The National AI Strategy: How should it look? Here’s some of my personal views and takeaways. Have the Regulators the skills and competency to hold organisations to account for what they are doing? asked Roger Taylor, the former Chair of Ofqual the exams regulator, as he began … Continue reading Views on a National AI strategy
The National Data Strategy is not about “the data”. People need to stop thinking of data only as abstract information, or even as personal data when it comes to national policy. Administrative data is the knowledge about the workings of the interactions between the public and the State and about us as people. It is … Continue reading The National Data Strategy. Rewiring State power.
Notes [and my thoughts] from the Women Leading in AI launch event of the Ten Principles of Responsible AI report and recommendations, February 6, 2019. Speakers included Ivana Bartoletti (GemServ), Jo Stevens MP, Professor Joanna J Bryson, Lord Tim Clement-Jones, Roger Taylor (Centre for Data Ethics and Innovation, Chair), Sue Daley (techUK), Reema Patel, Nuffield Foundation … Continue reading Women Leading in AI — Challenging the unaccountable and the inevitable
The Lords Select Committee report on AI in the UK in March 2018, suggested that,“the Government plans to adopt the Hall-Pesenti Review recommendation that ‘data trusts’ be established to facilitate the ethical sharing of data between organisations.” Since data distribution already happens, what difference would a Data Trust model make to ‘ethical sharing‘? A ‘set … Continue reading Can Data Trusts be trustworthy?
